Leave the light on

Time is pouring out like water from a pitcher, passing through my hands so shiny  and quick.  There are little boys pulling open drawers in the kitchen, asking for toast and milk and apples, and I want to be with them.  Continue reading

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Things we love

The days are getting shorter and the air, especially at night, has a new chill to it, which is a long way of saying,  it feels like fall!

Things we’re loving at our house right now: French toast with real maple syryp, Richard Scarry books, Goosie cards, BOB books, garden tomatoes, the reprintable resources from DSFOC,  Melissa and Doug’s play food set, this pretend clock, this zucchini bread, and fresh eggs from this chicken (now all grown up!).

What do you love, at your house?

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An oldie, but a goodie

Today I’m over here, with a short essay I wrote a few years ago. It feels as true today as it did then, perhaps even more-so after Avery’s surgery. I hope it rings true for you, too.

Thanks, Louise!

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One of the tricky questions about Down syndrome

And by that I mean:  supplements.

Recently a new mom to a baby with DS wrote me and was wondering if the thoughts I shared in my book about supplements, such as Nutrivene-D and others, were the same.  

A lot of things have happened since I first was thinking about the subject of supplements, when Avery was just a baby.  Some things had me leaning toward trying it; others had me shying away from the idea.   Continue reading

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An amazing thing happened

The kids and I just got back from a camping trip in Glacier National Park.  It was full of all the usual things:  campfires and scary stories and mosquitoes and starry skies and hiking, lots of hiking. 

Which to me, felt like a small miracle.  Continue reading

Posted in Down syndrome, Pinwheels | 36 Comments

Circles

Avery loves to draw circles.  Sometimes, we call them “O”s, sometimes it’s “zeros” but really, they’re all circles, and he’s very good at making them.  When he works, his face tightens with concentration as his little fingers grip the pencil.  His tongue peeks out, a wisp of golden hair falls in his eyes.  Continue reading

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Spinning

Lately, Bennett has been giving Tom and me little performances in the evening, usually a combination of dancing and karate moves.  He twirls and then chops the air with the heel of his hand, or bends over and kicks his back leg up into a handstand.  By this time, Avery has joined him and they jump and spin all around until they become dizzy and fall down.  I always worry they’ll bump into each other, accidentally konking heads, or that a stray kick will land in someone’s eye. Especially, I worry about Avery. Continue reading

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How did this happen?

This is the longest interval between posts here at Pinwheels since I began scribbling down my notes and thoughts more than 2 years ago.  I want to say I don’t know how this could have happened, but really, I already know the answer. Continue reading

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And now we are 6

This is what six-years-old looks like at our house. And if you’re wondering why there are 12 candles on the cake? 

Continue reading

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Happy Mother’s Day!

Here’s a beautiful new slideshow from Kurt Wilson of The Missoulian.  This is a post-surgery Avery, but you can see how busy, and active, and happy his recovery has been. 

And this is the link to the accompanying article by Vince Devlin, also of The Missoulian, who was with us the same day the photos were taken.

Posted in Road Map to Holland | Tagged , , , , | 16 Comments

A beautiful gift of love and time…

is here.  It’s from CJ, one of my very early inspirations when I was thinking about beginning a blog.  And now, she’s inspiring me all over again, with her wonderful and creative way of reaching out across our nation and the world to spread Down syndrome awareness.

What am I talking about? Continue reading

Posted in Down syndrome | 15 Comments

Follow-up visit

It’s very quiet around here, lately, and for that I’m so grateful.  We had another appointment with the cardiologist last Friday, and at that visit, Avery’s heart looked so good that we’ve been released from the weekly checks.  In fact, we don’t have to go back for 6 months! Continue reading

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I love playing hide-and-seek with all the boys,

but I especially love playing it with Avery.  Continue reading

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Believing in Achieving Conference

My weekend involved, in no particular order: 4 plane flights, a blizzard, an unexpected 2 hour detour on a Glacier Charters bus, a wonky computer, a plastic baby doll in my suitcase as it went through the airport security X-ray, a few tears, some excellent questions, and laughter–lots and lots of laughter. Continue reading

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I love this!

holland-2

Thank you, Connie!

Posted in Road Map to Holland | Tagged , | 27 Comments