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Monthly Archives: December 2006
American College of Obstetricians and Gynecologists
will begin recommending that every pregnant woman, regardless of age, be offered a choice of tests for Down syndrome. Previously, such diagnostic tests were only recommended for women over the age of 35. The new guideline is published in the … Continue reading
Posted in Down syndrome
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More on The Teachings of Jon
I watched “The Teachings of Jon,” a documentary about a family’s daily life with their adult son Jon, a forty-year-old man with Down syndrome, filmed by Jon’s sister, Jennifer. What I didn’t know about this family’s story was that for … Continue reading
Posted in Pinwheels
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Think of Me First as a Person,
a documentary shown publicly at the 2006 Home Movie Day in New Orleans, has been named to the National Film Registry by the Librarian of Congress, who chooses 25 “culturally, historically or aesthetically” significant motion pictures to add to the … Continue reading
Posted in Down syndrome
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Watching angels with Avery
Avery and I are watching a DVD called “Handel: the Messiah Choruses,” which is music accompanied by still photographs of the Benedtictine Abbey Church, and the surrounding countryside in Bavaria (Yuletide Naxos Musical Journey, 2000). He sits in my lap, … Continue reading
Posted in Pinwheels
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Steadiness and ease
Maggie, a very smart friend of mine, reminded me that winter, in nature, is a time of slowing down–a time of energy conservation and rest. Yet despite whatever pull we might feel toward the natural world and its rhythms, for … Continue reading
Posted in Pinwheels
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Tongue protrusion
A new study by Renato Cocchi, M.D., PhD., suggests that tongue protrusion in children with Down syndrome is “an aspecific symptom, without any relationship with the chromosome 21. Probably it is a symptom of internal metabolic stress with irritability of … Continue reading
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For Jooniper
Try as I might, when Avery was a newborn I couldn’t imagine my life with him. All I could see was sadness and heartache. Sometimes, just looking at him would make me cry. Almost four years have passed. I wish … Continue reading
Posted in Pinwheels
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China Medical creates two new diagnostic reagents
and will introduce them in early 2007. The reagents are designed to measure “the free beta subunit of human Chorionic Gonadotrophin (“Free hCGβ”) and Pregnancy Associated Plasma Protein A (“PAPP-A”), respectively, in maternal serum,” which are markers of Down syndrome. … Continue reading
Posted in Down syndrome
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The Teachings of Jon,
an hour-long documentary by Jennifer Owensby about her family’s life with her brother Jon, who has Down syndrome, will air a second time on Mediacom cable channel 9 at 9 pm tonight. The documentary appeared on PBS earlier in the … Continue reading
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A nurse’s refusal
Focus on the Family, a prolife Christian organization, reports the story of a nurse who, because of her religious beliefs, refused to assist in the abortion of a 22-week fetus with Down syndrome, which you can read about here. The … Continue reading
Posted in Down syndrome
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Happy new year, ASL-style
I remember being a new mom to Avery and watching the second Signing Times video, “Playtime Signs.” At the end, there is an original song by Rachel Coleman. I used to watch the show for myself, just so I could … Continue reading
Posted in Pinwheels
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Great news for Gifts…
a collection of writing by more than sixty moms, subtitled, “How Children with Down Syndrome Have Enriched Our Lives.” Editor Kathryn Lynard Soper has signed a contract for its publication with Woodbine House. The book is scheduled for release in … Continue reading
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The maternal is political,
and Shari MacDonald Strong’s book project of the same name has a call for submissions here. If, like me, you’ve found yourself acting as an advocate for your child or children and are interested in writing about the experience, get … Continue reading
Posted in Writing
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Gift ideas for special needs children
Blogger Dream Mom has posted a list of the best toys she and her Dear Son have received over the years (her son is now 15, but the suggestions are still very relevant), which you can see here.
Posted in Pinwheels
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