It’s a happy day here

at Pinwheels when I remember that it’s time for a new Special Needs Mama column at Literary Mama. This month, Vicki Forman writes about “The Center of the World.”

Her post reminds me of this: Like Evan, Avery has a one-of-a-kind belly button. There are “innies” and there are “outies.” Avery has a “way-outie.” A physician once asked me if we would like to schedule a surgery to repair it; at that time, we’d just gotten out of the NICU, Bennett had an upcoming surgery, and I was working on about two hours of sleep a night. The idea of undergoing a cosmetic surgery for a belly button seemed so silly to me that I snorted, startling the good doc. He took it as the “no” I meant to say, and didn’t ask me about it again.

About these ads

About jennifergg

I am a daughter, sister, wife, and mother to three sons. I am a cookie-baker, storyteller, kisser-of-boo-boos, and an advocate for children with disabilities. Pinwheels is my blog about life as the mother of a boy with Down syndrome. I also have a website at www.jennifergrafgroneberg.com
This entry was posted in Down syndrome, Pinwheels, Writing. Bookmark the permalink.

11 Responses to It’s a happy day here

  1. Jen says:

    It’s all about perspective, isn’t it?

  2. We thought Parker had an outie for the first 16 months of his life. Then when he finally gained a few pounds we discovered that it had been an innie in disguise!

  3. melody says:

    I love reading Vicki’s posts…and yours. My sons all have innies, one even despite all the scars of surgery.

    Tammy, I had to giggle at Parker’s innie in disguise. :)

  4. Rebecca P says:

    Miss E has an outie. :)

  5. jennifergg says:

    Tammy, Avery is still pretty skinny…I’m wondering if as he grows, maybe he’ll have a secret innie, too? Time will tell!

  6. Melissa says:

    d has an outie too :)

  7. Let’s hear it for snorting at silly suggestions made my doctors!

    Oh shoot, let’s just hear it for snorting, period. :)

  8. mum2brady says:

    How cute is that :) When Brady was born, his was a combination outtie/innie :) The outside part stuck out, and the inside part looked like a smile :) We called it his smiley button :) Now that he is big (wahhhhh) it is an innie :)

  9. vickiforman says:

    My friend Holly’s daughter Sydney is three years old and belly button obsessed. She calls it a “beebo” and pokes all day and loves her mommy’s too. Did you know Sandra Boynton has written a book about beebos??

  10. vickiforman says:

    Silly me. I meant to thank you for the link!!!

  11. Susan E says:

    Hi Jen, I loved this, esp. all the little idiosyncratic details about Avery that you share with us. Thanks for that–you always sound so calm and confident. Where does that come from? I could use more … :-)

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Connecting to %s