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Monthly Archives: September 2008
Permission to slow down
I received this email from Amelie, who blogs at Lola’s verrückte Welt. She writes: When I learned that Lola, my now 10 month old daughter, had Down syndrome, or at least, when I first had this suspection, on my own, … Continue reading
Mamas making a difference
Yay Renee and Lacey! Thanks to Patricia Bauer for the link.
Posted in Down syndrome
Tagged advocacy, Down syndrome, patricia e. bauer, Shreveport Times
3 Comments
Has anything more happened with Cathy?
I’m asked about Cathy often. I think there is a hope, and I understand this hope, that she will somehow come across my book and recognize herself in it and will have a change of heart. If she did, I … Continue reading
Posted in Road Map to Holland
Tagged Down syndrome, friendships, relationships, Road Map to Holland
12 Comments
Your heart will break and break and break again
Laurie of Days with Dylan wrote me an email asking about the part in my book when our family practitioner tells me that my life, as Avery’s mom, will be filled with heartache. She wondered if what he said had … Continue reading
Posted in Pinwheels
10 Comments
More good news…
The Prenatally and Postnatally Diagnosed Conditions Awareness Act (also sometimes referred to as the Kennedy-Brownback Bill, in honor of the two Senators who crafted it) has passed the House. It now moves on for the President’s signature. Patricia Bauer has … Continue reading
Posted in Down syndrome
3 Comments
Down Syndrome and Vitamin Therapy
Today I’m over at 5 Minutes for Special Needs Books, talking about Kent MacLeod’s Down Syndrome and Vitamin Therapy. If you’re interested, go there to win a free copy of the book.
Posted in Down syndrome
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The Prenatally and Postnatally Diagnosed Conditions Awareness Act
was approved by the Sentate by unanimous consent. Now, the Bill, also refered to as S.1810, moves to the House. For more info, see Patricia Bauer’s recap.
Posted in Down syndrome
2 Comments
Opportunities
There’s still time to send photos of your beautiful babies to Babytalk.com for their special feature honoring our kids with Down syndrome. Or, if you’re like me, and there aren’t any more babies in your house, you can go and … Continue reading
Posted in Pinwheels
2 Comments
I love the love!
Just when I think maybe I might not have much to say, or that maybe what I have to say probably doesn’t matter very much, here comes support and encouragement from all over. Thank you! Mom24 of 4Evermom shared the … Continue reading
Posted in Pinwheels
6 Comments
Two parts optimism, one part mother guilt
This is a post about Sarah Palin. It just takes a really long time to get there. So we’ve recently returned from our trip to the woods, which is where I do all my best thinking. And while we were … Continue reading
Posted in Pinwheels
11 Comments
In the fall,
in the woods, sometimes you can hear elk talking to each other. It’s called bugling, but it doesn’t sound like that at all. It’s more like bagpipes, or music, really, when they call back and forth across the hillsides. The … Continue reading
Posted in Pinwheels
6 Comments
Many hands
Was anyone else hopelessly distracted by the amazingly cute baby Trig at the RNC? I couldn’t take my eyes off him, and I especially loved that he was held throughout the night by so many sets of arms. We let … Continue reading
Posted in Down syndrome
14 Comments
Road Map in Italy
This beautiful image was sent to me by Connie Wenk. She writes, “As I sat on our balcony with your AMAZING book, enjoying it and my obligatory Italian cappuccino, my father-in-law’s Italian map was laying next to me on the … Continue reading
Posted in Road Map to Holland
14 Comments


