Can I ask you a personal question? Did Avery lose speech he had or did it seem like he was on the way to talking but then got stalled?
You have shared on your blog that he doesn’t speak much which always made me wonder. How does a child go from saying a full phrase like, ‘I love you’ to not speaking at all? If that is what happened, who could blame you for thinking that kind speech might not happen again! Glad Avery proved you wrong. I’m sure the waiting and wondering were not easy.Wishing you more special moments,C.
Sure, ask away…I liken Avery’s speech development to swiss cheese. There are times when it seems as if we’re going good, he imitates sounds and is more vocal, but then there are times when it’s as if we’re starting from scratch. I have no idea why this is.And too, he’s never strung so many words together before (as he did when he sang, “Happy Birthday to you.” ) The “ahluvyou” was like a long word, or one word with many syllables. It was rough, too, but recognizable. Then, nothing. For a long time, just one word sentences, and lots of signing. Until this (the happy birthday song).I really think there’s something going on in his brain, and I hope researchers can figure out why its happening. He understands everything, completely, but somewhere in the getting-the-words-out stage, it all gets lost. I now have the opinion that maybe many of the people with DS who have been diagnosed with learning disabilities are maybe just nonverbal, and they tested poorly as a result.With Avery, I’ve been down this road before, the doubt-filled road, the worry road, when I was obsessed with his not-walking. And of course, he did learn, in his own time. He’s in fact hopping, and climbing, and running, and doing all the things you’d expect a 5-year-old to do. Not only did he walk, he made up for any “lost” time, too.
So we keep trying different things regarding his speech, and will always keep trying, and it’s my hope that he will achieve the language we hope for him, in his own time. But his Happy Birthday song was soooo heartening. It was like a little glimpse into the future, of a day when Avery can talk to us all the time.