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Category Archives: Down syndrome
One of the tricky questions about Down syndrome
And by that I mean: supplements. Recently a new mom to a baby with DS wrote me and was wondering if the thoughts I shared in my book about supplements, such as Nutrivene-D and others, were the same. A lot of … Continue reading
Posted in Down syndrome
Tagged Down syndrome, growth and development, nutrivene-D, supplements, vitamins
29 Comments
An amazing thing happened
The kids and I just got back from a camping trip in Glacier National Park. It was full of all the usual things: campfires and scary stories and mosquitoes and starry skies and hiking, lots of hiking. Which to me, … Continue reading
Posted in Down syndrome, Pinwheels
35 Comments
A beautiful gift of love and time…
is here. It’s from CJ, one of my very early inspirations when I was thinking about beginning a blog. And now, she’s inspiring me all over again, with her wonderful and creative way of reaching out across our nation and … Continue reading
Posted in Down syndrome
15 Comments
Believing in Achieving Conference
My weekend involved, in no particular order: 4 plane flights, a blizzard, an unexpected 2 hour detour on a Glacier Charters bus, a wonky computer, a plastic baby doll in my suitcase as it went through the airport security X-ray, … Continue reading
T21 Traveling Afghan
I’m a little bit late in posting this, but in case you haven’t heard, the amazing CJ of Little Miss E has created a fun way to connect families, spread joy, and increase DS awareness. It’s called the T21 Traveling Afghan, and … Continue reading
Posted in Down syndrome
Tagged advocacy, disability, Down syndrome, DS Awareness, T21 Travelling Afghan
2 Comments
What about sibling relationships?
In the “Ask a question” thread over at the Downsyn.com book discussion, Monica was wondering what I’d noticed regarding the impact of DS on sibling relationships. I thought the question was an excellent one, and I wanted to share my … Continue reading
Posted in Down syndrome
Tagged compassion, Down syndrome, empathy, family, sibling relationships
10 Comments
A choice
The post about doctors has gotten me thinking (again) about the words we choose, and how they have the power to shape our feelings about a person, an event, or even a diagnosis. There’s an excellent post up at Bridget’s … Continue reading
Posted in Down syndrome
Tagged advocacy, diagnosis, Down syndrome, people first language, words
3 Comments
Fun stuff to share…
Jordan, who blogs at The Wonderwheel and also happens to be a Speech-Language Pathologist, has created a new blog especially for families interested in all things communication. Go here to check it out. Kristy Colvin, founder and president of the IMDSA, has … Continue reading
Posted in Down syndrome
Tagged blogging, book club, downsyn.com, language, mosaic down syndrome, Road Map to Holland, speech, world down syndrome day
7 Comments
More about speech
Mylie’s Mom asked these questions in the comments, and I thought they deserved a whole post of their own. She writes: Niksmom said, “Help your child find a way of communicating that is effective and let them develop from there.” … Continue reading
Posted in Down syndrome
Tagged chidlren, disability, Down syndrome, learning styles, speech therapy
22 Comments
Avery’s words
From a blog reader: Can I ask you a personal question? Did Avery lose speech he had or did it seem like he was on the way to talking but then got stalled? You have shared on your blog that he … Continue reading
Posted in Down syndrome
Tagged Down syndrome, early learning, language development, learning disabilities, questions, speech
14 Comments
Did you receive a prenatal DS diagnosis?
This is a message from Kori Shaw, creator of the Flourish Network for parents: Right now, I am completing my research for the Down Syndrome Affliates in Action (DSAIA) talk. I’ve been doing a benchmark study on what information and … Continue reading
Posted in Down syndrome
Tagged advocacy, AIA conference, Down syndrome, flourish network, prenatal diagnosis
11 Comments
A happy birthday song
Yesterday was Carter’s birthday, he’s 10 years old already, much to everyone’s happiness and astonishment (where did the time go?!). The day was filled with all the usual birthday things: a plastic candle holder that plays “Happy Birthday to You” … Continue reading
Think of it as a bookmark in my life
Disclaimer: This is a very disorganized post about reading, learning to teach reading, Avery, potty training, excellent books, synchronicity, and some especially sweet moments I don’t want to forget. Here we go! Several months ago I received an email from … Continue reading
On comparing
Bennett: I’m very fond of Avery. (This is Bennett’s new favorite expression. He’s very fond of many things–Bailey and applesauce with cinnamon sugar on top and Scooby-Doo and leaves, raked into a pile, for jumping in.) Me: I’m very fond … Continue reading
