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Tag Archives: Down syndrome
Things we love
The days are getting shorter and the air, especially at night, has a new chill to it, which is a long way of saying, it feels like fall! Things we’re loving at our house right now: French toast with real maple … Continue reading
An oldie, but a goodie
Today I’m over here, with a short essay I wrote a few years ago. It feels as true today as it did then, perhaps even more-so after Avery’s surgery. I hope it rings true for you, too. Thanks, Louise!
Posted in Writing
Tagged BLOOM, disability, Down syndrome, inspiration, parenting, special needs
5 Comments
One of the tricky questions about Down syndrome
And by that I mean: supplements. Recently a new mom to a baby with DS wrote me and was wondering if the thoughts I shared in my book about supplements, such as Nutrivene-D and others, were the same. A lot of … Continue reading
Posted in Down syndrome
Tagged Down syndrome, growth and development, nutrivene-D, supplements, vitamins
29 Comments
Circles
Avery loves to draw circles. Sometimes, we call them “O”s, sometimes it’s “zeros” but really, they’re all circles, and he’s very good at making them. When he works, his face tightens with concentration as his little fingers grip the pencil. … Continue reading
And now we are 6
This is what six-years-old looks like at our house. And if you’re wondering why there are 12 candles on the cake?
Posted in Pinwheels
Tagged 6-year-olds, birthdays, celebration, Down syndrome, inspiration, twins
24 Comments
Believing in Achieving Conference
My weekend involved, in no particular order: 4 plane flights, a blizzard, an unexpected 2 hour detour on a Glacier Charters bus, a wonky computer, a plastic baby doll in my suitcase as it went through the airport security X-ray, … Continue reading
We’re home!
Isn’t that amazing? That such a big thing could be accomplished in such a relatively short time? Avery is sitting on the couch watching Sponge Bob and bossing everyone around (very imperial) and I can’t find words big enough for … Continue reading
Avery’s heart
Every post I’ve written since this one is about more than whatever I’m writing about: it’s about coming to terms with the recent news we’ve had about Avery’s heart.
Posted in Pinwheels
Tagged ASD, atrial septal defect, Down syndrome, heart surgery, hopes, pediatric cardiology, prayer, surgery, wishes
97 Comments
T21 Traveling Afghan
I’m a little bit late in posting this, but in case you haven’t heard, the amazing CJ of Little Miss E has created a fun way to connect families, spread joy, and increase DS awareness. It’s called the T21 Traveling Afghan, and … Continue reading
Posted in Down syndrome
Tagged advocacy, disability, Down syndrome, DS Awareness, T21 Travelling Afghan
2 Comments
What about sibling relationships?
In the “Ask a question” thread over at the Downsyn.com book discussion, Monica was wondering what I’d noticed regarding the impact of DS on sibling relationships. I thought the question was an excellent one, and I wanted to share my … Continue reading
Posted in Down syndrome
Tagged compassion, Down syndrome, empathy, family, sibling relationships
10 Comments
A choice
The post about doctors has gotten me thinking (again) about the words we choose, and how they have the power to shape our feelings about a person, an event, or even a diagnosis. There’s an excellent post up at Bridget’s … Continue reading
Posted in Down syndrome
Tagged advocacy, diagnosis, Down syndrome, people first language, words
3 Comments
Yes, no and maybe: about doctors
Here’s another comment I wanted to pull out for discussion–this one is from Ellen.
Posted in Pinwheels
Tagged diagnosis, disability, doctors, Down syndrome, Dx, physicians
11 Comments
More about speech
Mylie’s Mom asked these questions in the comments, and I thought they deserved a whole post of their own. She writes: Niksmom said, “Help your child find a way of communicating that is effective and let them develop from there.” … Continue reading
Posted in Down syndrome
Tagged chidlren, disability, Down syndrome, learning styles, speech therapy
22 Comments
Avery’s words
From a blog reader: Can I ask you a personal question? Did Avery lose speech he had or did it seem like he was on the way to talking but then got stalled? You have shared on your blog that he … Continue reading
Posted in Down syndrome
Tagged Down syndrome, early learning, language development, learning disabilities, questions, speech
14 Comments
Did you receive a prenatal DS diagnosis?
This is a message from Kori Shaw, creator of the Flourish Network for parents: Right now, I am completing my research for the Down Syndrome Affliates in Action (DSAIA) talk. I’ve been doing a benchmark study on what information and … Continue reading
Posted in Down syndrome
Tagged advocacy, AIA conference, Down syndrome, flourish network, prenatal diagnosis
11 Comments
