A balanced look at diagnostic screening

Though this PBS news story originally appeared back in March, it seems more timely than ever. I missed it the first time around and would have missed it again if it weren’t for “All 4 My Gals”, who has the link posted on her site, too. Thank you!

You can check it out here.

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7 thoughts on “A balanced look at diagnostic screening

  1. Thanks for the post, Cause of Our Joy! And yes, the link to you on the blogroll should be working. I am looking forward to reading the stories you’ve collected of inspiring women. And congratulations on your writing success!

  2. OOps! My link on the last post isn’t working as I’m transporting to WordPress. Just go to Cause of Our Joy link on the sidebar link list! Sorry!

  3. There’s a new book out about women like these, who refused to be coerced, Defiant Birth: Women who Resist Medical Eugenics, by Melinda Tankard Reist.
    My first professional article to be published, about the birth of my pre-schooler with DS, Christina, will be a sidebar to the interview of this author, in the May/June issue of “Faith and Family” magazine.
    The writer of the main article wanted stories of women like all of you who, against medical pressure, had their babies anyway, and when I solicited stories, I was overwhelmed by so many awesome stories of courageous women. I’ll be posting them on my blog, one by one, for you to be inspired by.

  4. Hello Nelba!
    So good to hear from you! And as usual, your thoughts are terrific, and much appreciated.
    You, and other women like you, have become my hope. It makes me very sad that this testing issue is not going away, as I wish it would, but only becoming more widespread. As I see it, our best hope is in women like you, who know their hearts, and refuse to be coerced.

  5. In South Africa our experience has been that doctors do diagnostic testing (Nuchial fold scan, blood tests etc.) as a matter of course without clearly outlining why and what the consequences of knowing or suspecting Down Syndrome or genetic problems are. It is also done regardless of the mother’s age.

    With Marco we were simply told: Today we are going to do a Nuchial scan and I’m sending you for these tests. I went obediently, but when I started thinking about it, I felt very upset that I allowed it. With Loren I refused any prenatal testing. It made no difference to his CP as his problem was lack of oxygen after birth, in any case.

    My stance has always been that I would not abort a baby in the case of Down Syndrome or Spina Bifida or whetever else – without judging anybody else who may decide differently – so I’d rather not know in the first place.

    Other people may be wired differently, but I know that I will cope better dealing with these kind of issues with a live and real little person in front of me. So I don’t even want to know to “prepare myself”. But I can understand other people wanting time to educate themselves.

    We are faced with the same decision again and even though I have a child with CP and having another child with any kind of disability will be extremely difficult, I still feel the same way: No testing.

    Thanks for outlining this issue.

    Nelba

  6. Jen, I am so happy to hear from you on this subject! We received our Dx after birth, so we were never faced with any “decision”, other than our decision to forgo the amnio, because of our already high-risk pregnancy (twins). So I don’t have any firsthand experience with doctors giving results. I am glad to know you’ve had such experience. Your thoughts are important, and welcome.

  7. It’s such a heated issue, isn’t it? I read such terrible things about the medical community and how women feel pressured to terminate fetuses with Down Syndrome. I was fortunate to not have that experience, though my son’s DS was diagnosed prenatally.

    I can see my comment getting lengthy…perhaps I’ll do a post of my own! Thanks for the link to the story.

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