Are you pregnant?

If you are a pregnant mother and your baby has Down syndrome, my friends at Down Syndrome Pregnancy have created a place just for you.  Go here for information, support, and hope.  Best of all, it’s free!

4 Responses to Are you pregnant?

  1. jaime harman says:

    Hi, well my partner and I are 22 weeks pregnant and monday we found out the our son has ds. This has been the worst week of my life, I am trying to find out where I can get your book!!! I have a feeling it will make me feel better. Thank you!

    • Stephanie says:

      did you look online? I think they have it on amazon. If you need to talk or need any advice, click on my name (stephanie) below and let me know! My daughter will be 6 months old next week, she has down syndrome and just had her AVSD repair surgery about 4 weeks ago.

      Anyways, I know how hard it is to recieve the news that your child has DS, so I am always available to talk!

  2. Stephanie says:

    Hi!

    Your book was the first piece of literature I read when we found out our little girl has down syndrome. It is sent out in the new parents package by our childrens hospital.

    I have to thank you for that, because it has helped me tremendously!

    Our daughter hasn’t been born yet, we still have another 5ish weeks to go before we get to meet her, but your book greatly helped me accept (as much as possible right now) alot with regards to this new turn.

    I was told at 11 weeks that my blood tests showed a slight indication for chromosomal abnormalities and went in for a nuchal screen, and that with the the blood work and dates, came back as being a 1 in 14 chance (down from a 1 in 49 chance with just the blood work) that our baby had down syndrome. Then we had the amnio down at 15 weeks and a week later the prenatal coordinator at our childrens hospital called us with the news, that not only does our baby have DS, but our baby is also a SHE!

    So there was a big positive mixed in with the not so positive news, as I always dreamed that my first child would be a girl.

    Then at 19 weeks we had another ultrasound and they detected a heart defect. And at 23 weeks they did a fetal echocardiogram that confirmed the diagnosis of AVSD. So after Elaina is born, the first 1-2 weeks will be spent in the NICU and then she will have open heart surgery around 3-5 months old.

    And I think that of all the news we have gotten during this pregnancy, that has been the HARDEST part for me to accept.

    Anyways, back to the point of my message, thank you for you book, and I really think you should write another one, and update so to speak, on what has happened since the last one ended.

    Thanks again, you are truly an inspiration!
    Stephanie
    Halifax, NS, Canada

  3. Tanya Sadler says:

    Hello there,

    Well, I haven’t had a confirmed result for DS – just a 1 in 35 risk from my Nuchal. I have however declined the amnio and feel strong enough after reading your book (and another) to carry on regardless. Thank you.

    I’ll also never ever refer as ‘Down syndrome child’ but as ‘child with Down syndrome’ it’s so easy to be insensitive as people are ignorant (and I use that in the term of ‘unschooled’) as to what this actually means.
    Much love, Tanya xxx

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