Author Archives: jennifergg

About jennifergg

I am a daughter, sister, wife, and mother to three sons. I am a cookie-baker, storyteller, kisser-of-boo-boos, and an advocate for children with disabilities. Pinwheels is my blog about life as the mother of a boy with Down syndrome. I also have a website at www.jennifergrafgroneberg.com

Leave the light on

Time is pouring out like water from a pitcher, passing through my hands so shiny  and quick.  There are little boys pulling open drawers in the kitchen, asking for toast and milk and apples, and I want to be with them. 

Posted in Pinwheels | Tagged , , | 47 Comments

Things we love

The days are getting shorter and the air, especially at night, has a new chill to it, which is a long way of saying,  it feels like fall! Things we’re loving at our house right now: French toast with real maple … Continue reading

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An oldie, but a goodie

Today I’m over here, with a short essay I wrote a few years ago. It feels as true today as it did then, perhaps even more-so after Avery’s surgery. I hope it rings true for you, too. Thanks, Louise!

Posted in Writing | Tagged , , , , , | 5 Comments

One of the tricky questions about Down syndrome

And by that I mean:  supplements. Recently a new mom to a baby with DS wrote me and was wondering if the thoughts I shared in my book about supplements, such as Nutrivene-D and others, were the same.   A lot of … Continue reading

Posted in Down syndrome | Tagged , , , , | 31 Comments

An amazing thing happened

The kids and I just got back from a camping trip in Glacier National Park.  It was full of all the usual things:  campfires and scary stories and mosquitoes and starry skies and hiking, lots of hiking.  Which to me, … Continue reading

Posted in Down syndrome, Pinwheels | 36 Comments

Circles

Avery loves to draw circles.  Sometimes, we call them “O”s, sometimes it’s “zeros” but really, they’re all circles, and he’s very good at making them.  When he works, his face tightens with concentration as his little fingers grip the pencil.  … Continue reading

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Spinning

Lately, Bennett has been giving Tom and me little performances in the evening, usually a combination of dancing and karate moves.  He twirls and then chops the air with the heel of his hand, or bends over and kicks his back leg … Continue reading

Posted in Pinwheels | Tagged , , , | 12 Comments

How did this happen?

This is the longest interval between posts here at Pinwheels since I began scribbling down my notes and thoughts more than 2 years ago.  I want to say I don’t know how this could have happened, but really, I already know … Continue reading

Posted in Writing | Tagged , , , , | 24 Comments

And now we are 6

This is what six-years-old looks like at our house. And if you’re wondering why there are 12 candles on the cake? 

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Happy Mother’s Day!

Here’s a beautiful new slideshow from Kurt Wilson of The Missoulian.  This is a post-surgery Avery, but you can see how busy, and active, and happy his recovery has been.  And this is the link to the accompanying article by Vince Devlin, … Continue reading

Posted in Road Map to Holland | Tagged , , , , | 16 Comments

A beautiful gift of love and time…

is here.  It’s from CJ, one of my very early inspirations when I was thinking about beginning a blog.  And now, she’s inspiring me all over again, with her wonderful and creative way of reaching out across our nation and … Continue reading

Posted in Down syndrome | 15 Comments

Follow-up visit

It’s very quiet around here, lately, and for that I’m so grateful.  We had another appointment with the cardiologist last Friday, and at that visit, Avery’s heart looked so good that we’ve been released from the weekly checks.  In fact, … Continue reading

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I love playing hide-and-seek with all the boys,

but I especially love playing it with Avery. 

Posted in Pinwheels | 14 Comments

Believing in Achieving Conference

My weekend involved, in no particular order: 4 plane flights, a blizzard, an unexpected 2 hour detour on a Glacier Charters bus, a wonky computer, a plastic baby doll in my suitcase as it went through the airport security X-ray, … Continue reading

Posted in Down syndrome | Tagged , , , | 10 Comments

I love this!

Thank you, Connie!

Posted in Road Map to Holland | Tagged , | 23 Comments