Category: Down syndrome

He’s the man

This is Avery, who loves to zipline.  If you told me this would be part of our life 15 years ago, I never would have believed it!

October is here!

And if you’ve got a person with Down syndrome in your family, you know that it’s Down Syndrome Awareness Month.  This is a terrific post about what it feels like for us, and there are more links in the comments to other families and their stories.  That’s what I love about this month:  it reminds us we’re not alone.

This is from ten years ago, at our first Buddy Walk.  Where did the time go?

 

 

 

Some things I didn’t know…

I didn’t know that the actor, Ashton Kutcher, is a twin, or that his twin brother Michael was born with Cerebral Palsy.  I didn’t know that Kutcher, who is mostly known for his lighthearted acting roles, could be thoughtful and introspective, as he was when he said these words, as part of a speech he gave in Iowa on Saturday:

My brother was born with cerebral palsy and it taught me that loving people isn’t a choice and that people aren’t actually all created equal,” the actor said, fighting back tears. “The Constitution lies to us. We’re not all created equal. We’re all created incredibly unequal to one another, in our capabilities and what we can do and how we think and what we see. But we all have the equal capacity to love one another, and my brother taught me that.

One of the tricky questions about Down syndrome

And by that I mean:  supplements.

Recently a new mom to a baby with DS wrote me and was wondering if the thoughts I shared in my book about supplements, such as Nutrivene-D and others, were the same.  

A lot of things have happened since I first was thinking about the subject of supplements, when Avery was just a baby.  Some things had me leaning toward trying it; others had me shying away from the idea.   (more…)