Category Archives: Down syndrome

One of the tricky questions about Down syndrome

And by that I mean:  supplements. Recently a new mom to a baby with DS wrote me and was wondering if the thoughts I shared in my book about supplements, such as Nutrivene-D and others, were the same.   A lot of … Continue reading

Posted in Down syndrome | Tagged , , , , | 31 Comments

An amazing thing happened

The kids and I just got back from a camping trip in Glacier National Park.  It was full of all the usual things:  campfires and scary stories and mosquitoes and starry skies and hiking, lots of hiking.  Which to me, … Continue reading

Posted in Down syndrome, Pinwheels | 36 Comments

A beautiful gift of love and time…

is here.  It’s from CJ, one of my very early inspirations when I was thinking about beginning a blog.  And now, she’s inspiring me all over again, with her wonderful and creative way of reaching out across our nation and … Continue reading

Posted in Down syndrome | 15 Comments

Believing in Achieving Conference

My weekend involved, in no particular order: 4 plane flights, a blizzard, an unexpected 2 hour detour on a Glacier Charters bus, a wonky computer, a plastic baby doll in my suitcase as it went through the airport security X-ray, … Continue reading

Posted in Down syndrome | Tagged , , , | 10 Comments

I love this!

Posted in Down syndrome | 8 Comments

T21 Traveling Afghan

I’m a little bit late in posting this, but in case you haven’t heard, the amazing CJ of Little Miss E has created a fun way to connect families, spread joy, and increase DS awareness.  It’s called the T21 Traveling Afghan, and … Continue reading

Posted in Down syndrome | Tagged , , , , | 2 Comments

What about sibling relationships?

In the “Ask a question” thread over at the Downsyn.com book discussion, Monica was wondering what I’d noticed regarding the impact of DS on sibling relationships.  I thought the question was an excellent one, and I wanted to share my … Continue reading

Posted in Down syndrome | Tagged , , , , | 10 Comments

A choice

The post about doctors has gotten me thinking (again) about the words we choose, and how they have the power to shape our feelings about a person, an event, or even a diagnosis. There’s an excellent post up at Bridget’s … Continue reading

Posted in Down syndrome | Tagged , , , , | 3 Comments

Fun stuff to share…

Jordan, who blogs at The Wonderwheel and also happens to be a Speech-Language Pathologist, has created a new blog especially for families interested in all things communication.  Go here to check it out. Kristy Colvin, founder and president of the IMDSA, has … Continue reading

Posted in Down syndrome | Tagged , , , , , , , | 7 Comments

More about speech

Mylie’s Mom asked these questions in the comments, and I thought they deserved a whole post of their own. She writes: Niksmom said, “Help your child find a way of communicating that is effective and let them develop from there.” … Continue reading

Posted in Down syndrome | Tagged , , , , | 22 Comments

Avery’s words

From a blog reader: Can I ask you a personal question? Did Avery lose speech he had or did it seem like he was on the way to talking but then got stalled?     You have shared on your blog that he … Continue reading

Posted in Down syndrome | Tagged , , , , , | 14 Comments

Did you receive a prenatal DS diagnosis?

This is a message from Kori Shaw, creator of the Flourish Network for parents: Right now, I am completing my research for the Down Syndrome Affliates in Action (DSAIA) talk. I’ve been doing a benchmark study on what information and … Continue reading

Posted in Down syndrome | Tagged , , , , | 11 Comments

A happy birthday song

Yesterday was Carter’s birthday, he’s 10 years old already, much to everyone’s happiness and astonishment (where did the time go?!). The day was filled with all the usual birthday things: a plastic candle holder that plays “Happy Birthday to You” … Continue reading

Posted in Down syndrome | Tagged , , , | 17 Comments

Think of it as a bookmark in my life

Disclaimer:  This is a very disorganized post about reading, learning to teach reading, Avery, potty training, excellent books, synchronicity, and some especially sweet moments I don’t want to forget.  Here we go! Several months ago I received an email from … Continue reading

Posted in Down syndrome | Tagged , , , , , , , , | 21 Comments

On comparing

Bennett: I’m very fond of Avery. (This is Bennett’s new favorite expression. He’s very fond of many things–Bailey and applesauce with cinnamon sugar on top and Scooby-Doo and leaves, raked into a pile, for jumping in.) Me: I’m very fond … Continue reading

Posted in Down syndrome | Tagged , , | 23 Comments