This is Avery, who loves to zipline. If you told me this would be part of our life 15 years ago, I never would have believed it!
And if you’ve got a person with Down syndrome in your family, you know that it’s Down Syndrome Awareness Month. This is a terrific post about what it feels like for us, and there are more links in the comments to other families and their stories. That’s what I love about this month: it reminds us we’re not alone.
This is from ten years ago, at our first Buddy Walk. Where did the time go?
Here’s a terrific podcast from writer Amy Silverman about her daughter Sophie. So much good stuff in it!
I didn’t know that the actor, Ashton Kutcher, is a twin, or that his twin brother Michael was born with Cerebral Palsy. I didn’t know that Kutcher, who is mostly known for his lighthearted acting roles, could be thoughtful and introspective, as he was when he said these words, as part of a speech he gave in Iowa on Saturday:
My brother was born with cerebral palsy and it taught me that loving people isn’t a choice and that people aren’t actually all created equal,” the actor said, fighting back tears. “The Constitution lies to us. We’re not all created equal. We’re all created incredibly unequal to one another, in our capabilities and what we can do and how we think and what we see. But we all have the equal capacity to love one another, and my brother taught me that.
I can’t think of a better way to show how universal life with Down syndrome is, or how full of possibility, than this video. I love it!
And by that I mean: supplements.
Recently a new mom to a baby with DS wrote me and was wondering if the thoughts I shared in my book about supplements, such as Nutrivene-D and others, were the same.
A lot of things have happened since I first was thinking about the subject of supplements, when Avery was just a baby. Some things had me leaning toward trying it; others had me shying away from the idea.
The kids and I just got back from a camping trip in Glacier National Park. It was full of all the usual things: campfires and scary stories and mosquitoes and starry skies and hiking, lots of hiking.
Which to me, felt like a small miracle.
is here. It’s from CJ, one of my very early inspirations when I was thinking about beginning a blog. And now, she’s inspiring me all over again, with her wonderful and creative way of reaching out across our nation and the world to spread Down syndrome awareness.
What am I talking about?
My weekend involved, in no particular order: 4 plane flights, a blizzard, an unexpected 2 hour detour on a Glacier Charters bus, a wonky computer, a plastic baby doll in my suitcase as it went through the airport security X-ray, a few tears, some excellent questions, and laughter–lots and lots of laughter.
I’m a little bit late in posting this, but in case you haven’t heard, the amazing CJ of Little Miss E has created a fun way to connect families, spread joy, and increase DS awareness. It’s called the T21 Traveling Afghan, and here’s how she explains it:
In the “Ask a question” thread over at the Downsyn.com book discussion, Monica was wondering what I’d noticed regarding the impact of DS on sibling relationships. I thought the question was an excellent one, and I wanted to share my answer here, too.
The post about doctors has gotten me thinking (again) about the words we choose, and how they have the power to shape our feelings about a person, an event, or even a diagnosis. There’s an excellent post up at Bridget’s Light about this very topic, I encourage you to check it out.
Thank you, Lisa, for the link!
Jordan, who blogs at The Wonderwheel and also happens to be a Speech-Language Pathologist, has created a new blog especially for families interested in all things communication. Go here to check it out.
Kristy Colvin, founder and president of the IMDSA, has come up with an amazing way to raise awareness, have fun, and celebrate World Down Syndrome Day (3/21) that she’s named “Genes Day.” You can get more details from her blog, Mosaic Moments.
And finally, are the winter blahs getting to you? What better way to pass the time than talking about books! The book club discussion at Downsyn.com is back on, and this week we’re discussing, hmmm, can you guess? You don’t have to be signed in to read along–if you want to participate, becoming a member of Downsyn.com is very easy. And if you’d prefer, you can email me your questions/thoughts and I can post them, for you.
Mylie’s Mom asked these questions in the comments, and I thought they deserved a whole post of their own. She writes:
Niksmom said, “Help your child find a way of communicating that is effective and let them develop from there.” Do you all have ideas for doing this? What methods have you found to be helpful? At what age did you child seem to grasp the potential of signing in communicating – when did they really start to take interest in learning new ones in order to be able to communicate their wants?