Category Archives: Pinwheels

Leave the light on

Time is pouring out like water from a pitcher, passing through my hands so shiny  and quick.  There are little boys pulling open drawers in the kitchen, asking for toast and milk and apples, and I want to be with them. 

Posted in Pinwheels | Tagged , , | 47 Comments

Things we love

The days are getting shorter and the air, especially at night, has a new chill to it, which is a long way of saying,  it feels like fall! Things we’re loving at our house right now: French toast with real maple … Continue reading

Posted in Pinwheels | Tagged , , , | 15 Comments

An amazing thing happened

The kids and I just got back from a camping trip in Glacier National Park.  It was full of all the usual things:  campfires and scary stories and mosquitoes and starry skies and hiking, lots of hiking.  Which to me, … Continue reading

Posted in Down syndrome, Pinwheels | 36 Comments


Avery loves to draw circles.  Sometimes, we call them “O”s, sometimes it’s “zeros” but really, they’re all circles, and he’s very good at making them.  When he works, his face tightens with concentration as his little fingers grip the pencil.  … Continue reading

Posted in Pinwheels | Tagged , , , , | 19 Comments


Lately, Bennett has been giving Tom and me little performances in the evening, usually a combination of dancing and karate moves.  He twirls and then chops the air with the heel of his hand, or bends over and kicks his back leg … Continue reading

Posted in Pinwheels | Tagged , , , | 12 Comments

And now we are 6

This is what six-years-old looks like at our house. And if you’re wondering why there are 12 candles on the cake? 

Posted in Pinwheels | Tagged , , , , , | 24 Comments

Follow-up visit

It’s very quiet around here, lately, and for that I’m so grateful.  We had another appointment with the cardiologist last Friday, and at that visit, Avery’s heart looked so good that we’ve been released from the weekly checks.  In fact, … Continue reading

Posted in Pinwheels | Tagged , , , | 21 Comments

I love playing hide-and-seek with all the boys,

but I especially love playing it with Avery. 

Posted in Pinwheels | 14 Comments

The tale is told in the unpacking

I’ve been slowly removing items from the back of the car, things I’d thought we might need on our trip to Seattle, and with each box or bag, I’m realizing the car was packed by a crazy woman.

Posted in Pinwheels | Tagged , , , , , , , | 24 Comments

We’re home!

Isn’t that amazing?  That such a big thing could be accomplished in such a relatively short time? Avery is sitting on the couch watching Sponge Bob and bossing everyone around (very imperial) and I can’t find words big enough for … Continue reading

Posted in Pinwheels | Tagged , , , | 49 Comments

The surgery was a success

and Avery has been moved from the CICU to the regular hospital floor.  I can’t thank you enough for the love and concern, it helped me so much, especially through the long afternoon of surgery yesterday, and the longer night … Continue reading

Posted in Pinwheels | Tagged , , , | 64 Comments

Update on Avery

Hello everyone, This is Jennifer’s faraway friend Rebecca. I just had the pleasure of talking with Jennifer in Seattle. Avery’s surgery was a success. Jennifer was very calm and collected, and wants everyone to know that even in her most … Continue reading

Posted in Pinwheels | 2 Comments

Thank you

Just last night, after Avery’s bath, when he was walking around in his underpants and refusing to put on his pajamas (it’s a stage, very defiant, can you believe it was annoying to me just last week?) Tom said, “It’s really … Continue reading

Posted in Pinwheels | Tagged , , , , , | 63 Comments

Avery’s heart

Every post I’ve written since this one is about more than whatever I’m writing about: it’s about coming to terms with the recent news we’ve had about Avery’s heart.

Posted in Pinwheels | Tagged , , , , , , , , | 97 Comments

No More Tears

I’ve been thinking about the past, lately, reviewing things in my mind, reliving our early days, from that shocking phone call from the pediatric cardiologist with the words, “Good news!  You won’t be life-flighted to Seattle for emergency surgery!” (Tom’s reply:  … Continue reading

Posted in Pinwheels | Tagged , , , , , | 4 Comments