Believing in Achieving Conference

My weekend involved, in no particular order: 4 plane flights, a blizzard, an unexpected 2 hour detour on a Glacier Charters bus, a wonky computer, a plastic baby doll in my suitcase as it went through the airport security X-ray, a few tears, some excellent questions, and laughter–lots and lots of laughter. Continue reading “Believing in Achieving Conference”

Update on Avery

Hello everyone,

This is Jennifer’s faraway friend Rebecca. I just had the pleasure of talking with Jennifer in Seattle. Avery’s surgery was a success. Jennifer was very calm and collected, and wants everyone to know that even in her most nervous of moments she felt lifted by our love and prayers. She mentioned twice that the surgeon was happy guy, so happy that she felt assured that things went well.  She is waiting to see Avery who is in the ICU right now, and plans to kiss every inch of his body that isn’t covered in tape, lines, and wiring.

In the best case scenario they will be headed back home in about four days, provided that the baby steps to wean him off everything goes as planned. If Avery needs more time the stay could be extended. Jennifer will be calling with a report tomorrow after the doctors have made their rounds. Please keep them in your thoughts and prayers in the coming days as Avery recovers from surgery.

Thank you

Just last night, after Avery’s bath, when he was walking around in his underpants and refusing to put on his pajamas (it’s a stage, very defiant, can you believe it was annoying to me just last week?) Tom said, “It’s really going to break my heart, seeing the scar.” Continue reading “Thank you”

No More Tears

I’ve been thinking about the past, lately, reviewing things in my mind, reliving our early days, from that shocking phone call from the pediatric cardiologist with the words, “Good news!  You won’t be life-flighted to Seattle for emergency surgery!” (Tom’s reply:  My God, I didn’t even know that was an option) to the way the smell of the NICU used to seep into my clothes, my hair, my skin.  Especially, the babies.  They didn’t smell like milk, or diapers, or lotion, or even Tom, me.  They smelled like the hospital. Continue reading “No More Tears”

What about sibling relationships?

In the “Ask a question” thread over at the book discussion, Monica was wondering what I’d noticed regarding the impact of DS on sibling relationships.  I thought the question was an excellent one, and I wanted to share my answer here, too.  Continue reading “What about sibling relationships?”