rain on fresh wet paint (at least it’s raining)
weeds growing faster than you can pull (but the lilacs are growing, too)
kitchen faucet drip drip dripping (dishes are done)
mud on the just-washed stairs (footprints of my boys)
dog nose prints on windows (a good dog)
the work of life
is finding beauty
in these ordinary
the amazing power of the sun
(Taken from the book, Wildflowers: Ferns and Grasses)
pale gray light
puddles of mud
I love you
the way the grass loves
The rain started late last night, or very early this morning. I could hear it hitting the metal roof of the house. It’s a peaceful sound, one we don’t hear often in the arid West. When I awoke this morning, it was cloudy and cool, and still threatening rain. We’d planned lots of outdoor work today, but plans change! One thing rainy days are really good for is washing indoor windows. And also, reading books. And also, also, taking naps. I think I’ll do all three.
I’ve been reading a blog by a wonderful woman named Lisa Leonard, do you know of her? What’s not to love about this post? She’s honest and brave and I find those qualities to be inspiring. I particularly love this part:
My heart needed to grieve. Caring for two boys with such different needs was really, hard—and that was okay. I didn’t have to pretend it wasn’t hard. I could be honest. I could say it was hard. I could ask for help. I could take breaks. None of these things affected my love for David or Matthias. None of these made me a ‘bad mom’ or a failure. They simply made me human.
I didn’t know that the actor, Ashton Kutcher, is a twin, or that his twin brother Michael was born with Cerebral Palsy. I didn’t know that Kutcher, who is mostly known for his lighthearted acting roles, could be thoughtful and introspective, as he was when he said these words, as part of a speech he gave in Iowa on Saturday:
My brother was born with cerebral palsy and it taught me that loving people isn’t a choice and that people aren’t actually all created equal,” the actor said, fighting back tears. “The Constitution lies to us. We’re not all created equal. We’re all created incredibly unequal to one another, in our capabilities and what we can do and how we think and what we see. But we all have the equal capacity to love one another, and my brother taught me that.
These spiritual window-shoppers, who idly ask,
‘How much is that?’ Oh, I’m just looking.
They handle a hundred items and put them down,
shadows with no capital.
What is spent is love and two eyes wet with weeping.
But these walk into a shop,
and their whole lives pass suddenly in that moment,
in that shop.
Where did you go? ‘Nowhere.’
What did you have to eat? ‘Nothing much.’
Even if you don’t know what you want,
buy something, to be part of the exchanging flow.
Start a huge, foolish project,
It makes absolutely no difference
what people think of you.
Late last night, we were driving home from town in the dark, when about a dozen mule deer appeared in our headlights. Deer on the road is not unusual, when you live in the country. They’d jumped the barb wire fence along the side of the road, and were milling about, trying to figure out what to do next. We were each in our own little worlds–the older boys were mostly asleep, Tom was concentrating on the road, I was thinking about what I needed to do once we got home, when Avery looked up and said, “WOW!”
We all sort of woke up when he said it, and agreed, it was absolutely a WOW moment. Avery was the only one who truly saw it–and without him, we would have missed it.
Do you know Kelly Rae Roberts? Her website makes me feel so happy, and full of inspiration!
Here’s a conversation we’ve been having a lot at my house, lately:
Avery: I’ve got good news!
Me: Terrific! I love good news. What’s up?
Avery: I’m a big one!
Me: Yes! You’re not a little boy, anymore. You’re big!
I love that he’s so proud of himself, and that he’s embracing all the changes that adolescence brings. I love that he’s not scared, or worried about the future. And I love that he makes me want to try to be brave, and hopeful, and not resistant to change, too.
because every day is World Down Syndrome Day, at our house! Lately, Avery has been saying he wants to go to college (I think he really just wants to go to the college cafeteria, where he can drink unlimited Dr. Peppers. But we will work on that…). So it’s wonderful to know about places that will support his dream.
I can’t think of a better way to show how universal life with Down syndrome is, or how full of possibility, than this video. I love it!
3-21 is World Down Syndrome Day, because of the significance of the numbers (3 for a trisomy, 21 for the 21st chromosomal pair where the trisomy occurs in T-21, or Down syndrome). And in honor of my family’s connection to T-21, here’s a list of 21 things we love about Avery:
- He’s a snappy dresser. Especially, he likes bow ties.
- His favorite food is shrimp.
- He loves to draw.
- He loves to play Xbox, particularly football.
- He has a guitar and he makes up beautiful songs.
- When we sit down to dinner, after the prayer, he gives a little toast in which he says nice things about everyone at the table. Things like, “You’re a nice guy,” or “You’re a good friend,” or “You’re a good brother.”
- He always sets the table for dinner.
- He likes to go camping.
- He likes to stay in hotels, particularly ones with room service.
- He loves Dr. Pepper.
- He’s very deliberate in his actions.
- He doesn’t lie.
- He notices when people need a hug, or a pat on the back, or encouragement, and he gives it freely.
- He likes to have long chats about his future.
- He changes what he wants to do in his life often. He has no problem with change.
- He believes everything is possible.
- He says “thank you” about a hundred times a day.
- He loves animals, especially Sam, our dog.
- He has no trouble asking for help.
- He has no trouble giving help.
- When he laughs, it’s a whole-body laugh, and it’s contagious.
I feel as if I’ve been waiting for something to happen for so long that waiting has become a habit. It’s not a good habit! To help myself get unstuck, I’m trying new things. One of them is here: Make Your Own Magic With Andrea Scher. She’s a superhero. And I love that she says, “No capes, just courage.”