Leave the light on

Time is pouring out like water from a pitcher, passing through my hands so shiny  and quick.  There are little boys pulling open drawers in the kitchen, asking for toast and milk and apples, and I want to be with them.  Continue reading “Leave the light on”


Fun stuff to share…

Jordan, who blogs at The Wonderwheel and also happens to be a Speech-Language Pathologist, has created a new blog especially for families interested in all things communication.  Go here to check it out.

Kristy Colvin, founder and president of the IMDSA, has come up with an amazing way to raise awareness, have fun, and celebrate World Down Syndrome Day (3/21) that she’s named “Genes Day.”  You can get more details from her blog, Mosaic Moments.

And finally, are the winter blahs getting to you?  What better way to pass the time than talking about books!  The book club discussion at Downsyn.com is back on, and this week we’re discussing, hmmm, can you guess?  You don’t have to be signed in to read along–if you want to participate, becoming a member of Downsyn.com is very easy.  And if you’d prefer, you can email me your questions/thoughts and I can post them, for you.

Happy reading!

Flotsam and jetsam, or…

in other words, this: you know how, if you go into any house where there’s a toddler, you’ll always find a wicker laundry basket placed discretely behind the couch, or beneath a window, or even left right out in the open; and you’ll always find it because it’s just so very handy. A place to put all the debris of the day, a home for all the miscellany. That’s what this post is like. A wicker laundry basket of odds and ends.

Here we go:

Lots of folks have noticed my new(ish) header. And like most things in my life, there’s a loooong story behind even this littlest of changes. For a while now, I’ve been aware that people would like to see visual images of my family. I don’t know why it’s been such a dilema for me; still, I always had once excuse or another. First it was that I didn’t know how to get photos onto my blog, then it was that I didn’t have a camera. Then, I didn’t know how to use the camera. And of course, I’m always too busy….

I could go deeper, about my inherent dislike of cameras (which I wrote about in my book! Say Cheese!) or about Internet privacy issues (how many folks write whole books about themselves? Or, how many authors tell you where they live?). All of it would be true. All of it factored in.

But then, I saw Trig Palin on TV. I know Sarah Palin is sometimes criticised for “using” her family; I can’t speak to that point, because I don’t know what motives are in her heart. What I do know is that seeing Trig on television helped me, and my family, and particularly, Carter. And so I thought, If she can do it, so can I.

And later, I chickened out.

And later still, I made a compromise: one teeny, tiny photograph of Avery. In the header. For DS Awareness month.

Baby steps, no?

So thank you for your kind response, and the encouragement. I need it!

Speaking of encouragement, there’s another thing that’s been on my mind for a while now. When I returned from the NDSC Conference in Boston, I had many feelings about my weekend, all possible feelings really, everything you could imagine beginning and ending with tears, of happiness and of sadness, too. Sadness for the women who should have been there with us; for the ones who needed the support and education and resources even more than I did, women who couldn’t be there simply because they didn’t feel they deserved it, couldn’t make it work, didn’t have the money to go.

I want to help. I had this little plan that I could put ads up on Pinwheels and use the revenue for a scholarship each year to the NDSC Conference, and if there were enough money, maybe even send another woman to BlogHer too. I was so excited in fact that I contacted some people who explained to me, in the nicest possible way, that I can’t have ads in my current blog set-up. I’d have to change my hosting service, or other things (that are way too technical for me to explain myself), and the news, which was really just a little bump in the road, a tiny speed bump, was enough to set me back. For now, all I’ve been doing is wishing I could make it happen. And I need to do more than wish. So I’m asking you, dear Internet, for your input. Any thoughts? Any ideas? Any suggestions?

And finally, lots of folks have asked for an Avery update now that he’s 5 1/2. And like any proud mama, I’ll tell you all the things he can do–he’s potty trained. He feeds himself. He walks, runs, climbs, jumps. He’s mastered stairs, and he sleeps through the night in his bunkbed, which is on top (with rails), and he climbs up the ladder himself. He is excellent at the skill, Poke. He is also very good at bugging his brothers. Coincidence? I think not (I’m looking at you, Brittney).

He loves: music, our dog Bailey, his brothers, yogurt, drawing, bananas, oatmeal, cooking (especially licking the spoon), sweeping, folding laundry, and loading the dishwasher. And best of all? He finds me each morning, like he always has, and gives me the first hug of the day.

One last thing?  I’ve got another book to share.  Go here to check it out.