The days are getting shorter and the air, especially at night, has a new chill to it, which is a long way of saying, it feels like fall!
Things we’re loving at our house right now: French toast with real maple syryp, Richard Scarry books, Goosie cards, BOB books, garden tomatoes, the reprintable resources from DSFOC, Melissa and Doug’s play food set, this pretend clock, this zucchini bread, and fresh eggs from this chicken (now all grown up!).
What do you love, at your house?
Today I’m over here, with a short essay I wrote a few years ago. It feels as true today as it did then, perhaps even more-so after Avery’s surgery. I hope it rings true for you, too.
And by that I mean: supplements.
Recently a new mom to a baby with DS wrote me and was wondering if the thoughts I shared in my book about supplements, such as Nutrivene-D and others, were the same.
A lot of things have happened since I first was thinking about the subject of supplements, when Avery was just a baby. Some things had me leaning toward trying it; others had me shying away from the idea. Continue reading “One of the tricky questions about Down syndrome”
Avery loves to draw circles. Sometimes, we call them “O”s, sometimes it’s “zeros” but really, they’re all circles, and he’s very good at making them. When he works, his face tightens with concentration as his little fingers grip the pencil. His tongue peeks out, a wisp of golden hair falls in his eyes. Continue reading “Circles”
This is what six-years-old looks like at our house. And if you’re wondering why there are 12 candles on the cake?
Continue reading “And now we are 6”
My weekend involved, in no particular order: 4 plane flights, a blizzard, an unexpected 2 hour detour on a Glacier Charters bus, a wonky computer, a plastic baby doll in my suitcase as it went through the airport security X-ray, a few tears, some excellent questions, and laughter–lots and lots of laughter. Continue reading “Believing in Achieving Conference”
Isn’t that amazing? That such a big thing could be accomplished in such a relatively short time? Avery is sitting on the couch watching Sponge Bob and bossing everyone around (very imperial) and I can’t find words big enough for how good it feels. Continue reading “We’re home!”
Every post I’ve written since this one is about more than whatever I’m writing about: it’s about coming to terms with the recent news we’ve had about Avery’s heart. Continue reading “Avery’s heart”
I’m a little bit late in posting this, but in case you haven’t heard, the amazing CJ of Little Miss E has created a fun way to connect families, spread joy, and increase DS awareness. It’s called the T21 Traveling Afghan, and here’s how she explains it: Continue reading “T21 Traveling Afghan”
In the “Ask a question” thread over at the Downsyn.com book discussion, Monica was wondering what I’d noticed regarding the impact of DS on sibling relationships. I thought the question was an excellent one, and I wanted to share my answer here, too. Continue reading “What about sibling relationships?”
The post about doctors has gotten me thinking (again) about the words we choose, and how they have the power to shape our feelings about a person, an event, or even a diagnosis. There’s an excellent post up at Bridget’s Light about this very topic, I encourage you to check it out.
Thank you, Lisa, for the link!
Here’s another comment I wanted to pull out for discussion–this one is from Ellen. Continue reading “Yes, no and maybe: about doctors”
Mylie’s Mom asked these questions in the comments, and I thought they deserved a whole post of their own. She writes:
Niksmom said, “Help your child find a way of communicating that is effective and let them develop from there.” Do you all have ideas for doing this? What methods have you found to be helpful? At what age did you child seem to grasp the potential of signing in communicating – when did they really start to take interest in learning new ones in order to be able to communicate their wants? Continue reading “More about speech”
This is a message from Kori Shaw, creator of the Flourish Network for parents:
Right now, I am completing my research for the Down Syndrome Affliates in Action (DSAIA) talk. I’ve been doing a benchmark study on what information and materials women are given when they get a prenatal Down syndrome diagnosis. I’m focused here in the San Francisco Bay Area. I’ve gone to Stanford, etc. There is nothing here! No support, no materials. I’m absolutely astounded.
Would you be able to ask your blog readers about this? Did they receive a prenatal diagnosis? What was their experience? They can contact me through the flourishnetwork.org site, or you can share my email: email@example.com. Thanks!
I remember several years ago, when my book was just an idea floating around, one of the editors in NYC made the comment that my experiences were probably unique to Montana, and that if I’d lived closer to a big city, I’d have had a better time of it.
Which may, or may not, be true. I pointed out that Dr. Skotko’s (then recent) study about women’s experiences with the DS diagnosis delivery was very similar to my own, and that his study had included a wide range of respondents from all across the county.
And now, years later, it seems we still have work to do. I hope you’ll help Kori, if you can.